Tag Archive for rare

NFDC India’s next, Ridham Janve’s debut feature in rare Indian ‘Gaddi’ language, The Gold Laden Sheep & The Sacred Mountain to have its International Premiere at International Film Festival Rotterdam (IFFR), 2019 in Bright Future Competition Section

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

Ridham Janve’s debut feature, presented by National Film Development Corporation, The Gold Laden Sheep & The Sacred Mountain to have its International Premiere at the International Film Festival Rotterdam (IFFR) held from 23rd January to 3rd February 2019.

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Platinum Love Bands 2018-19 Collection is a Toast to Your Rare Love Discover 30 designs, 30 stories across 30 days!

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

In a first of its kind initiative, Platinum Days of Love introduces 30 new designs of Platinum Love Bands with 30 films that mirror & celebrate modern day couples. These couples, aspire for a relationship that is based on true equality. Where each individual wants to feel valued as a partner for his/her distinct persona, beliefs & value system. They each want unique aspects of their individuality to be genuinely accepted. It’s this kind of love, that’s truly rare to find & few manage it.

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BANGALORE BAPTIST HOSPITAL IN ASSOCIATION WITH ORGANIZATION FOR RARE DISEASES INDIA INAUGURATES THE FIRST PAEDIATRIC NEUROMUSCULAR CLINIC, IN THE COUNTRY

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

Bangalore Baptist Hospital in association with ORDI – Organization For Rare Diseases, India, today inaugurated India’s very first Paediatric Neuromuscular Service, simply called “The Muscle and Nerve Clinic”. This specialty service has a range of specialists who have come together to provide care for patients who suffer from these rare diseases that affects the muscle and nerves, thus causing weakness.

This service was set up with the goal of providing holistic and multidisciplinary care and treatment under one roof, for children and families with these rare group of disorders, who often need support from multiple experts in various specialities. In other words, the aim is to do away with the typical phenomenon that families with rare diseases end up going through, that of having to run from pillar to post, in their quest for appropriate solutions. Rare diseases, by their very nature mean that they are often under diagnosed and end up with potentially preventable complications. The clinic aims to provide timely, accurate and targeted diagnosis and treatment for patients suffering from these conditions, by following a protocol based approach built on international standards of care, thus improving the life span and quality of life of these children, while providing hope to their care givers and parents. Read more

Platinum- A ‘Rare’ gift of love for your mother

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

Platinum bracelet

You are because SHE is. Your story begins from her womb and nurtures in the shade of her love until you grow into your own person. She is your innermost being. She dons different roles in your life but no one can play her, for she truly is one of a kind. She is your mother. The unconditional support, the unbreakable bond, the unspoken vow of love in your life. Read more

THE RACE FOR RARE DISEASES MUST GO ON

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

Across the world, the last day of February is commemorated as World Rare Disease Day to raise awareness of the impact that rare diseases have on the lives of patients and those who care for them. It is a day that brings together patients, families, caregivers, medical professionals, policymakers and members of the public in solidarity.  Read more

RACE FOR 7: MUMBAI WALKS FOR RARE DISEASES

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

Lending their collective voice to the rare disease community in India, an enthusiastic 1500+ participants, including rare disease patients and their caregivers, took part in Race for 7 in Mumbai and were joined by another 3500+ in Bangalore. Race for 7 is an awareness walk/run organized by the Organization for Rare Diseases (ORDI), an NGO committed to addressing the challenges faced by those living with rare diseases. The objective of Race for 7 is to raise awareness for the 7000 documented rare diseases and the estimated 70 million patients in India suffering from a rare disease. The event was flagged off by Sangeeta Barde, Co-Founder, ORDI and Amit Mookim, Managing Director IQVIA. Read more

Raising Awareness for Rare Diseases: Race for 7

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By K Ashwin Mobile: 09920183006 Email:indianshowbusiness@gmail.com

The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced the 2018 edition of Race for 7. Race for 7 is a 7000 meter walk/run to raise awareness for the 7000 documented rare diseases. What started as an awareness walk in 2016 to commemorate World Rare Disease Day in February has now grown into a significant campaign, conducted simultaneously in three cities and two countries – Bangalore, Mumbai and Washington DC. This year the walk will be conducted on Sunday, the 25th of February. Read more

Rare feat for EuroSchool students

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By  Vivek K. Mobile: 09920183006  Email:indianshowbusiness@gmail.com

In a rare feat, students from EuroSchool Thane brought laurels to the nation for being the only Asian school to be selected to feature their song for a German album EINE WELT – One World. Of the 10-member contingent, five were pre-teens and nine were girls. Read more